Rare Disease Day

February 28, 2019. In Honor of Rare Disease Day I wanted to change up my regular blog format and focus on spreading more information about ITP instead of focusing only on our experience. Our experience with ITP is even more rare than the disease itself. Eva really was one in a million. This is not … More Rare Disease Day

February 20, 2019

Dear Eva, Hey Sweet Heart. Miss you like crazy. I’ve been having a really tough few days. Daddy and I got out of town on Friday and came home on Saturday and I’ve been basically crying since we came home. I’m not even sure what triggered this but I’ve not been able to snap out … More February 20, 2019

February 14, 2019

Dear Eva, Happy Valentine’s Day Baby Goober! I miss you! Please give Grandma Eva, Grandma Blanche, and Grandpa Bernard big Valentines kisses for me. I miss you all so much. I’m feeling kinda funny today. Not sad, not happy. Just off. Missing you on these special days is so much harder than regular days. I … More February 14, 2019

February 12, 2019

Dear Eva, Hey Baby Girl. I miss you! I love you! It’s been a couple days since I last updated our “One Year Ago” blog stream so I thought I better jump on here today. It’s been a quiet couple of days and Mama really needed that. My emotions got the better of me on … More February 12, 2019

February 9, 2019

Dear Eva, I just spent what seems like forever transferring 2093 pictures on to a USB drive. Every single picture I have of you. Which might be a lot but is honestly not nearly enough. I know that Aunty Jack has a bunch too that I’ll have to steal one day but for now having … More February 9, 2019

February 7, 2019

Dear Eva, Hey Baby Girl. Mama is feeling a lot better today. Talking to you yesterday really helped. I find right now I am feeling so many emotions of what we went through last year plus all of the usual grief. I remember feeling so confused and out of control. I was feeling a type … More February 7, 2019

February 6, 2019

Dear Eva, Good Morning, baby bug. I miss you so much. Feeling pretty down on myself today. The loneliness likes to creep in and remind me of what is missing, especially when I’m already feeling out of it to start the day. I hate feeling so empty. Feeling a major loss of purpose these days. … More February 6, 2019

January 26, 2019

Dear Eva, I’m exhausted, empty, and broken. I had a full day, full of laughter, quality time with Aunty Jack, and some special pampering. It felt like at the end of the day when Aunty and I sat down for dinner and a drink I just crashed. By the time we got home I was … More January 26, 2019

January 22, 2019

Dear Eva, January 22, 2018, we had just gotten back from Grandma and Grandpa’s house the day before. I had noticed a few red spots by your eye and I was nervous. I called Dr. Gali and she asked me to bring you back in for blood work. She was surprised because your platelet count … More January 22, 2019